#DBlogWeek Day 4 The Healthcare Experience


Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What's your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

As much as "Your Diabetes May Vary" our opinions about the state of healthcare today are pretty unified: we want access, we want choice, and we want the decision for our treatment and care to be between us and the doctor--not the insurance company! Here's some of what our followers on Instagram had to say:

  • type1diabecky My biggest frustration is being told how I must care for my health. We don't have a choice when it comes to having this disease. Our insurance companies should let us decide what pump/CGM combo works best for our individualized needs.#mypumpmychoice

  • mommy0111 My biggest frustration is the constant battle to get the supplies my daughter needs. She's 13 and they just want her to be an adult. I have to keep the struggle to say she's 13 and this is what she needs to stay alive. Finally got a case manager that truly gets pediatrics and what they need and for that I am truly blessed. She finally helped get her pump and cgm approved along with her supplies. Hoping things will stay smooth for now. #mychildmychoice #betterdiabetes management

  • keepitrealfoodco "Healthcare" in this country actually means "sick care". We learn so little about being and staying sustainably healthy that we are making ourselves sick!

  • eml818 My biggest frustration is being told my daughter can only use one certain pump, one certain meter and test strips and one certain insulin. And we pay a huge monthly payment to work. I am thankful for their $10 co plan though ... But it's almost like thru font want your child to check their bg when you have to fight for more than 100 strips .. Got them to 200.. Ridiculous!

Whether we are parents of children newly diagnosed with Type 1 or adults who have been fighting this disease for years, we want the right to get the insulin our doctor prescribes, the right to as many test strips as we need to help manage blood sugar, the right to cgm technology if we want it , and the right to choose the best method of insulin delivery--injections or pump. We want choice. We want freedom. We want some control.


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